Diagnosed

At the very young age of 18 months my daughter Charlotte was diagnosed with an autoimmune disorder called Celiac Disease. In a nutshell she is unable to digest gluten.

Symptoms

Several months prior to her diagnosis, Charlotte began to have severe stomach pains and problems going to the bathroom.  She associated food with pain and began to have insufficient weight gain .  On occasion she would also develop a sand-like rash on her body.  She was being monitored by her pediatrician during this time and was started on a medication called Miralax to help ease her struggles with going poop.

Testing

The testing for Celiac Disease finally was ordered when Charlotte began pooping bright red blood.  Her pediatrician ordered a bunch of tests and an x-ray of her abdomen.  The test results showed she was positive for Celiac Disease.  She was referred by her pediatrician to see a gastroenterology specialist.

Diet – Be Aware That Gluten is in a lot of Products

Charlotte was started on a strict gluten free diet and I quickly became aware that gluten is in a lot of stuff.  This includes some shampoos, conditioners, medications, soaps, sunblocks, play dough, and glues. Now that she is 6 years old she has the whole gluten free way of life down.  Her biggest challenge is when she is out in public. She often gets bummed out when she sees other’s eating fantastic looking foods that she can’t have.  However, she personally knows first handed how crummy gluten makes her feel and knows it isn’t worth it.

A Tip 

Keeping gluten free goodies at all times in the freezer has been very beneficial.  That way if Charlotte is going to a party she can bring her own special treat with her.  She also has her own designated gluten free section in the cabinet.

For Support or Questions

If you know someone who has Celiac Disease, is gluten free and needs some support look no further.  Charlotte is very open and aware of her condition.  As her mother I can offer some helpful tips and advice too.

I look forward to hearing any feedback you may have @ Laura@2RNs.org.

 



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